Have you had experince of Laparoscopic Uterine Nerve Ablation (LUNA) for chronic pelvic pain?
Pelvic pain in women can have a number of causes, including endometriosis (a condition in which tissue that is normally found lining the inside of the womb also occurs outside the womb, usually in the pelvic cavity). In many cases of pelvic pain, the cause is unknown. Laparoscopic uterine nerve ablation (LUNA) involves the destruction of a small segment of ligament that carries nerve fibres within the pelvis.
The National Institute for Health & Clinical Excellence (NICE) will be drafting guidance to the NHS, determining whether this procedure is safe and works well enough to be used more widely in the NHS by clinicians, such as consultants. This guidance will cover England, Wales, Scotland and Northern Ireland.
Patients and carers – particularly those who have experienced this procedure - are invited to give their written views as part of this consultation on whether our draft guidance has anything important missing or factually wrong and whether you agree with the recommendations made. We have a short questionnaire you can use to do this. The consultation on this procedure runs from 29th May to 26th June 2007 as part of NICE’s Interventional Procedures Programme.
Patient and carer comments will be presented to the decision-making committee, and responses to comments will be published with the final guidance. We would like to reassure that patient and patient organisation comments really can make a difference, and previous comments by both have led to changes in our recommendations and the wording of our guidance. Experience of this particular procedure would be particularly useful, but comments are also most welcome from patients or carers who can comment on this procedure from a patient perspective e.g. because they have the condition it treats or have had an alternative procedure for the same condition.
A patient information guide will be available. Support to complete the consultation questionnaire can also be offered by Joanna Pearl from the Patient and Public Involvement Programme on 0207 067 4767/ e-mail: joanna.pearl@nice.org.uk. All interested parties are welcomed and should contact Joanna (preferably by e-mail) in the first instance or can contact [insert patient organisation contact details]. You can also keep in touch with the progress of procedures by using the NICE website www.nice.org.uk
|
